2. Marfan Syndrome Now
Now is a much better time to have Marfan Syndrome than ten or more years ago. This is because there have been a lot of advances in Marfan Syndrome and how it’s understood by surgeons and doctors; there have also been many medical advances in the way Marfan Syndrome is diagnosed, which means that it is being spotted much easier in people when they have it, which means in turn that there is a much lower mortality rate due to the symptoms of Marfan Syndrome.
There have also been more advances in how the symptoms of Marfan Syndrome itself are treated – there is no cure, but with treatment people who have Marfan Syndrome can be expected to live a completely normal life. The same was not true fifty years ago, where the disease was often diagnosed wrong (or not at all) and treatment did far more harm than it did well.